tag:blogger.com,1999:blog-15542047824916503702024-02-06T23:40:15.361-05:00Welcome To My New Life Fighting A Disease I've Never Heard Of Before....... Ankylosing SpondylitisI decided to start a blog to have an outlet for my frustration, as well as, triumphs dealing with ankylosing spondylitis. This will be my personal journey but I hope it can help others fighting AS. Comments are welcomed. I look forward to hearing from others that are on the same path.Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.comBlogger67125tag:blogger.com,1999:blog-1554204782491650370.post-47545540370218554012022-12-24T08:53:00.003-05:002022-12-24T08:53:43.108-05:00Life Has Changed My life completely changed in June. I became a grandmother. Wow, that sounds so old! I’ve decided I will be called “Mimi”.My grandson is the light of my life. I never realized how precious grandchildren would feel.My only concern is my body and ankylosing spondylitis. I have the joyous privilege of babysitting three days a week while my daughter and son-in-law work. As my grandson has grownFighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-66728918210799020502021-12-27T16:25:00.003-05:002021-12-27T16:25:42.836-05:00A Mother Feels Her Children's Pain How does a mother face the fact that she has unknowingly passed a chronic condition on to her child? I've been asking myself that for some time now. I have guilt because my children are my heart. I would do anything to protect my children. Yet I have no doubt that at least two of my children have spine problems just like me. It weighs on me daily. Let me share a bit about my sons.&Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-38021733993026372052021-12-26T19:30:00.001-05:002021-12-26T19:30:21.938-05:00Christmas Without Her 2021 I hope your Christmas this year was spent with those you love most. It certainly has been different from past Christmas for us. I'm sure many are experiencing "first" kinds of holidays this year. Christmas 2020 was spent quarantining from extended family members. Due to my immune system being weakened from my Ankylosing Spondylitis medications, we felt safer by only celebrating with Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-91520470786550643192020-10-01T10:22:00.000-04:002020-10-01T10:22:47.462-04:00Using My Ebay Store To Raise AS Awareness I've been neglecting to update everyone on my eBay journey. It has become one of the greatest joys of my life. That probably sounds crazy, but I receive so much pleasure running my own store. If you've followed my blog you know I had to leave my prior job due to my Ankylosing Spondylitis. I was unable to work on a set schedule. With AS you can't make solid plans because Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-73497581004068184482020-03-04T05:17:00.000-05:002020-03-04T05:17:56.714-05:00My Fear of The Future As I sit here at 4:35 a.m., I'm thinking of what my future will look like.
My back was hurting so much I couldn't stay in the bed any longer. Sometimes it feels like my spine is about to burst. I don't know if other Ankylosing Spondylitis warriors feel this same sensation. As sleepy as I was, I had to get up and move.
I have noticed my symptoms have been steadily Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com2tag:blogger.com,1999:blog-1554204782491650370.post-4739463369145771542019-12-09T16:02:00.001-05:002019-12-09T16:10:51.944-05:00Dental Surgery DisappointmentToday has been a disappointing day. I had an appointment with an oral surgeon this morning. It didn't go as expected.
I guess I should start at the beginning. Several years ago, the roof of my mouth would wake me up itching. I know that sounds weird, but what about our bodies isn't weird? Anyway, I would have to rub the roof of my mouth with my tongue to relieve the itching. I assumed it was an Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-86192020912557895692019-12-03T22:06:00.000-05:002019-12-03T22:06:19.833-05:00Exciting News.... Long Overdo Update
WOW! So much has happened since I last posted.
I apologize for disappearing for such a long time. Life happens and I guess we all let things fall by the wayside, but I promise to try to update more regularly.
First, I want to let everyone know my most exciting news.....
I talked about opening an Ebay store in some of my last posts. I'm happy to tell you I've been selling on Ebay since Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-43422625831521680692019-02-13T08:18:00.000-05:002019-02-13T08:18:35.420-05:00Where Is My Specialty Pharmacy? *A Small Rant* Here we are halfway through February already. As I get older it seems the years pass quicker.
Unfortunately, this new year has not began well. I experienced a change in my health insurance January 1, 2019. This normally might not be problematic, but if you are on biologic medications it can be a nightmare. With my prior insurance company, I was only allowed to receive 1 prefilled Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-46684197764108241332019-01-26T21:49:00.000-05:002019-01-26T21:49:43.052-05:00Thoughts of A Chronic Disease Warrior I am looking into other options to help my family's financial situation. I know with my ankylosing spondylitis I am at a disadvantage. I am unable to perform the types of jobs I have held in the past. I currently have a part time job, which allows me to pick my own hours and days. It is perfect because if I am experiencing too much pain on one day, I can simply work another Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-57610129452340262952018-11-16T07:24:00.000-05:002018-11-16T07:29:32.583-05:00How Did The Dog Know The House Was On Fire?My last post was a while ago, in it I promised my next would be about my nephew's dog. He was the reason my sister was not inside her home when it caught on fire. Did he know something terrible was about to happen? I think he did, I consider him a hero.
First, let me give you some information about this remarkable dog. About 6 or 7 years ago my nephew moved into his own home. He Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-27721818841695478252018-11-03T21:39:00.000-04:002018-11-03T21:39:45.478-04:00Fall Brings Something Besides Cooler Days Fall is here finally! It seems like it's been so hot for so long, I couldn't handle being outside for very long. These cooler days are definitely a welcomed relief from the heat. So why does my pain levels have to increase every fall? I began to notice this trend a few years ago. It is disheartening because fall and spring has always been my favorite times of the year. Those two seasons Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-53037384073810413612018-09-13T08:57:00.001-04:002018-09-13T08:57:47.851-04:00The House Is Burning Three weeks ago, I received a call from my mom telling me my sister had a small accident. Immediately my mind thought she meant a motor vehicle accident. Mom quickly explained it was actually an accident involving fire. My sister's home was on fire. Mom didn't seem too have many details. Later I learned my sister asked her daughter-in-law to call mom and not tell mom how bad things Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-50720860978788985422018-08-11T20:16:00.001-04:002018-08-11T20:16:07.560-04:00A Quick UpdateHello again!
I haven't posted in a while due to several reasons. Since I am sitting here resting, I thought I would give you a quick update.
Health wise:
I had an upper respiratory infection in June. While the antibiotics cleared the URI up quickly, trying to get my insurance to pay the doctor has been a headache. It is in appeals right now. I may go into detail in a later post.
About 3 weeksFighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-35292474030638230732018-06-23T15:43:00.001-04:002018-06-23T15:43:43.853-04:00My Body Is My Teacher When will I learn not to overdo myself at work? I know I have to pace myself. The reason I am working my current job is so I can have a very flexible schedule. I have experienced the fatigue and pain from pushing my body.
I know how my body responds, so why did I push myself yesterday? I was looking forward to a 3 day weekend with my husband and kids. I worked about 30 minutes Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-37107389866645959452018-06-13T08:29:00.000-04:002018-06-13T08:29:18.282-04:00Enjoy The Beauty Around You Last Wednesday I did something I have not did in years. Two of my children and I went for a long, leisurely walk in our town. We don't live inside our town limits but we are there at least 2-3 times a week. However, on those weekly trips it's for business or grocery shopping. Those trips are focused on the task at hand. We don't take time to enjoy the beauty of our little town.
I Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-14205974323333608192018-06-02T21:39:00.002-04:002018-06-02T21:39:32.576-04:00The Difference In Beans and Burgers If you follow my blog, you know I haven't written in a while. Life has been a sort of whirlwind for the last few months. I have felt drained and fatigued trying to keep up.
In March, I began searching for some type of supplemental work to help our family. I was denied social security disability due to not having enough work credits. However, being denied benefits basedFighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-69372518254141598522018-02-26T18:15:00.001-05:002018-02-26T18:15:11.657-05:00Ankylosing Spondylitis and Future Generations Today I received a call from my son's school nurse. My son wasn't running a temperature, but he felt dizzy, light headed, and nauseous. My oldest son went to the school and brought his brother home. As soon as he came in the door, I sent him to his bed. I tucked him in the bed and asked if he needed anything. He went to sleep quickly. I checked on him a few times. He looked so peaceful Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-72613858573671615892018-02-21T08:39:00.001-05:002018-02-21T08:39:21.422-05:00Ankylosing Spondylitis Prognosis - What It Means To Me Yesterday I received an arthritis magazine I subscribe to in the mail. I began my subscription years ago, when I was first diagnosed. Back then I looked anywhere I could to get more information on ankylosing spondylitis. I found limited amounts even on the web.
Eventually, I discontinued my magazine subscription for a period of time. This was mainly due to the magazineFighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-31637327992143130042018-02-19T15:00:00.001-05:002018-02-19T15:00:30.537-05:00Movement Is The Key - AS & RA Warriors
Before I was diagnosed with Ankylosing Spondylitis, I had never heard of it. I knew something terrible was going on with my body, but I assumed it was Rheumatoid Arthritis. When I was a small child, my maternal grandmother was diagnosed with RA. We visited her every Sunday. I remember her crying in pain during some of those weekly visits. I also remember her recounting her weekly Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-59574944187376972752018-02-19T08:03:00.002-05:002018-02-19T08:03:48.170-05:00My Weekly Weight Reflection - February 19, 2018This week's weight loss is a disappointment. I don't want to make up excuses for my failure. I prefer to reflect and determine the steps I need to change.
Where I went wrong.....
I did not drink much water at all this past week. That truly was my greatest downfall.
I gave into my cravings. Some days they seem overwhelming.
I did not follow through with my plan to exercise more.
I was Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-58998693266806213122018-02-18T13:56:00.001-05:002018-02-18T13:56:24.305-05:00Ankylosing Spondylitis Has Robbed Me Of Being Desirable Happy Sunday! It's a gorgeous, sunny day at my house. After weeks of snow and rain it feels so great to have sunshine pouring into our home.
My goal for today is to go for a long walk on our local walking trail. I'm writing this while waiting for my husband to get ready to go with me. The exercise will be good for both of us.
My husband had aortic valve and aortic root Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-86926216796962665822018-02-14T08:06:00.002-05:002018-02-14T08:06:54.272-05:00Learning To Work At A Slower Pace With AS
Today I thought I'd share our videos about remodeling our son's bedroom. I posted earlier about trying to help my husband with this project. It was a slow process. Ankylosing Spondylitis is so unpredictable, one day I may feel like I can conquer the world but be bed ridden the next day. It has taught me to make flexible plans and just go with the flow.
(Pardon the horrible mess!)
The video Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-31515909834009763102018-02-13T07:51:00.002-05:002018-02-13T07:51:48.186-05:00My Weight Loss Has Begun.... Now To Stay Motivated! I wanted to update you on my progress with my weight loss. I hope to post a weekly update. I think it will help keep me motivated. I'd love to hear ways you stay motivated.
&Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-52843618008723642822018-02-12T15:04:00.000-05:002018-02-13T07:12:46.898-05:00A New Prospective Hello friends. If you visit my blog you will see some changes. I was tired of my old theme.
I don't know if it was only me, but I felt the look of it was tired and sad. My new background feels more upbeat and happy. I hope it makes you feel happy also.
My daughter says she thinks I have Seasonal Affective Disease (SAD). When it's rainy and gloomy my mood is gloomy. I Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0tag:blogger.com,1999:blog-1554204782491650370.post-87709687899175240252018-02-09T08:12:00.000-05:002018-02-09T08:12:42.501-05:00The Deepest Pain Of All I'm wondering if you've ever felt the kind of pain that cuts you to your core. I'm not talking about Ankylosing Spondylitis pain. We deal with it in one form or another daily. I'm speaking of emotional pain. The hurtful pain that makes your heart ache. I've experienced some painful emotions in my 46 years but there are a few that stands out as the worst.
Sometimes I wonder do the Fighter Dailyhttp://www.blogger.com/profile/01498647117707152125noreply@blogger.com0