Welcome To My New Life Fighting A Disease I've Never Heard Of Before....... Ankylosing Spondylitis

  On top of dealing with AS, Fibro, Neuropathy, Osteoarthritis, and Scoliosis, I am very stressed about money.   My family is struggling financially. In December 2016, I had to make the hard decision that it was time to give up my job. The fatigue and pain from my diseases and working was overwhelming. I would come home from work and go straight to bed. Some days, I would get up about 8pm and make myself a bowl of cereal or a sandwich. My mother lives beside me, she would cook healthy meals for my teenage son. Many days she would save me a plate, which was a blessing. Toward the fall of 2016, my mom realized how horrible my struggle had become and cooked every day for us.   My husband works second shift, 3pm - 11:30pm. By the time my husband drives home from work, it's 12:30am. Therefore, he only saw me in the morning for a half hour or so before I left for work. It was a rough schedule, not being able to see each other. We made it work for 3 years but I don't think...

 I have been dedicating my blog to ankylosing spondylitis awareness, but I have several other diagnoses as well. I believe while AS is my main fight, these other diseases aren't making it easy for me to keep fighting. Today I want to share one of the other enemies of my body.   It all began in my childhood. I can remember as an 8 year old crying with back pain. My aunt babysat me daily while my parents worked. She was an older lady, the kind who tells all those intriguing tales of the good ole days. My aunt was born in 1918, she was in her 60s when I was a child. I guess I equated her to a grandmother, since a majority of my grandparents passed away before I was born.  My aunt told my parents I needed to see a doctor about my severe back pain. Mom and dad were tobacco farmers, with a few cattle, plus they worked on a job 40 hours a week. They stayed so busy they really didn't see me very much. I mean I slept in their home, but I was dropped at my aunt's house when I wa...

  Yesterday my mom called to chat. She had been to visit my sister. Mom mentioned my sister was cleaning her bathroom walls. Which got me to thinking, I haven't washed my bathroom walls in such a long time I don't even remember it.   My clean freak of a mom would croak if she knew that. However, when I was employed I just didn't have the energy to do much housework. Basically I came home, fixed my kids a quick bite to eat, took a shower, and went straight to bed. I typically was in bed by 8 pm. I know that is crazy early but I had to be up every morning at 4:55 a.m. for work. Plus as most of you with anklosing spondylitis can relate, I had some nights of rolling and turning. Hip pain, rib pain, neck pain, and burning feet are my worst nighttime AS visitors. I wish I could be one of you super woman who work a job, have a spotless house, and are moms. I applaud each of you. I have many times felt such disappointment in myself because I can't keep it all up. My family de...