Welcome To My New Life Fighting A Disease I've Never Heard Of Before....... Ankylosing Spondylitis

     I am looking into other options to help my family's financial situation. I know with my ankylosing spondylitis I am at a disadvantage. I am unable to perform the types of jobs I have held in the past. I currently have a part time job, which allows me to pick my own hours and days. It is perfect because if I am experiencing too much pain on one day, I can simply work another day. However, this job may be coming to an end soon. I hope things work out and I can continue with my current position, but I do not want to wait and be left with no income. Hence, I have been scouring the web and asking opinions from friends about jobs they think I might be able to handle with my health issues. It hasn't been an easy task.     Where can someone with ankylosing spondylitis, scoliosis, osteoarthritis, peripheral neuropathy, and fibromyalgia get hired? Good question, huh? Yes, I know some people don't disclose their health issues to employers, but how can I not since the...

  I'm not sure if it's just me or if everyone experiences this, but there are days I don't want to leave the house. It can be days before a scheduled appointment or task, that I begin to dread the thought of going. There are days that I hurt and ache too much to go anywhere. Those aren't the days I'm describing. It's just a mounting sense of dread that holds me back. I can schedule something and even look forward to that event, but as the event draws closer my eagerness turns to apprehension. My mind is consumed with "should I cancel" or "maybe I can leave early". I begin to question myself as to why I even scheduled the event in the first place.    I had my annual mammogram scheduled for 2:30 yesterday. Last Friday, I began thinking maybe I should cancel. My thoughts were, I have had a mammogram every year, so I probably could put it off until next year. I mean all my prior mammograms have been clear, no lumps or cysts. Plus, my mom doesn...

  Good news.... my insurance approved Cosentyx. That's step 1 of the process. Now to follow through with the other requirements.      Step 2- My doctor wanted me off the Enbrel at least two weeks before starting the Cosentyx. I've actually been off Enbrel three weeks. Each week that passes I hurt more. The last few days my hips have hurt terribly during the night and for about an hour upon rising. So I am excitedly, anticipating starting the new medicine. If you're a biologic medication user you know how crazy that sounds. Even with the doctor's warnings of IBS risk, cancer, infections, etc which the medicine can cause, I need something to slow the hip degeneration. When I hurt like I have the past few days I imagine this monstrous disease is progressing toward taking more away from me. Walking is a gift. I try to think how blessed I am to still be mobile. Never take anything for granted.   Step 3- Due to the medication risk factors, my doctor requires I hav...

  I keep saying I am going to focus more on my health. I have gained so much weight, I don't even recognize myself in the mirror. I am the heaviest I have ever been.   My weight issues are contributed to by a number of things. If you have a chronic illness like ankylosing spondylitis, you know what I mean when I say exercising is a pain. Some days I do not feel like dragging out of bed, let alone exercise. On the days I feel well enough to exercise I usually overdo it, trying to make up for lost time. Which ends with me spending the next couple days in severe pain.   Another contributor is my medicines. Several of my medicines have weight gain as a side effect. Just what I don't need! Why can't I have a medicine that has weight loss as a side effect?? Is there even such a medicine out there??   Also, depression helps add to my unhealthy eating. When I start feeling down and stressed, I eat mindlessly.    I was barely 100 lbs when I married my husban...

  Even as my doctor says it, I cringe....      Why do most medicines have those nasty, horrible side effects?    As my doctor explains, this new medication has been known to cause or worsen, Irritable Bowel Syndrome. I'm thinking... really, really??!! She has got to be joking. Why would anyone take a medicine that can instigate another disease.   I mean, I'm no fan of stomach cramps or diarrhea. As a matter of fact, I experience that enough without the aid of a medication side effect. There are some rather embarrassing moments, I definitely wish I could erase from my brain.   As I sit there listening to her voice I'm thinking no way, no thank you. I am NOT going to use that medicine. Nope, not this girl!    At that point my doctor checks my most recent lab work. She explains my current medication isn't helping my inflammation levels. She does a physical "feel" of the joints in my shoulder, elbows, hands, and feet. A m...

  Last night as I lay in bed trying to get to sleep, my feet were burning and my ankles ached. I have Peripheral Neuropathy. My neurologist prescribed Gabapentin about 3 years ago and has increased my dosage as needed.    I had an appointment with my neurologist last month. I told her my neuropathy symptoms are worsening, keeping me awake at night and causing me to fall more frequently. The doctor explained she could increase my Gabapentin, but the side effects would also increase. My main side effect being sleepiness during the daytime. If that side effect would hit me at nighttime it would be the perfect solution to my problems. Alas, no luck there. After telling her I certainly didn't need more daytime sleepiness, she said Lyrica might be an option. Of course, I have saw the advertisements on television for Lyrica. My doctor told me I would need to discontinue the Gabapentin before beginning Lyrica. Therein lies the problem, my Gabapentin also helps control...