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Showing posts with the label lupus

Thoughts of A Chronic Disease Warrior

     I am looking into other options to help my family's financial situation. I know with my ankylosing spondylitis I am at a disadvantage. I am unable to perform the types of jobs I have held in the past. I currently have a part time job, which allows me to pick my own hours and days. It is perfect because if I am experiencing too much pain on one day, I can simply work another day. However, this job may be coming to an end soon. I hope things work out and I can continue with my current position, but I do not want to wait and be left with no income. Hence, I have been scouring the web and asking opinions from friends about jobs they think I might be able to handle with my health issues. It hasn't been an easy task.     Where can someone with ankylosing spondylitis, scoliosis, osteoarthritis, peripheral neuropathy, and fibromyalgia get hired? Good question, huh? Yes, I know some people don't disclose their health issues to employers, but how can I not since the...

Ankylosing Spondylitis - My Social Planner

  This morning was one of those mornings, the kind where you would like to stay in bed all day, but can't.   Normally, I try to not commit to too many engagements on the same weekend, let alone the same day. Ankylosing Spondylitis has taught me very quickly who controls my social agenda. As many of you with autoimmune diseases wholeheartedly know, our minds and hearts may be set on doing something but our bodies may say, "no way, not today".   I had confirmed months ago, I would attend my cousin's wedding at 4 p.m. today. I was expecting I would have all day to get this ole body moving and ready to attend. Of course, it doesn't always go as planned.   For several years, I have attended an annual Women's Conference in the fall. I enjoy these conferences very much and value the time with my friends and community. I found out a few weeks ago that the conference was today from 9 a.m. until 2 p.m. That's how you end up filling too many activities into one...