When I am in the sun my arm gets a raised, hot to touch, red rash that burns. Does anyone experience this? Is this related to ankylosing spondylitis? Comments welcomed. Please click follow to join me.
My Fear of The Future
As I sit here at 4:35 a.m., I'm thinking of what my future will look like. My back was hurting so much I couldn't stay in the bed any longer. Sometimes it feels like my spine is about to burst. I don't know if other Ankylosing Spondylitis warriors feel this same sensation. As sleepy as I was, I had to get up and move. I have noticed my symptoms have been steadily increasing. I attribute some of this to the lack of my biologic medication. My insurance company denied the prior authorization of my injections; until my rheumatologist submits lab work showing proof that the medication is helping. Although I know the medicine was helping to a degree, the lab work shows high inflammatory markers. My last sedimentation rate was in the 70s and my CRP was also elevated. What do I do now? It's unclear at this point. I've tried and failed on other medications. Is this how the rest of my life will be? Trying medicine after medicine with only slight improvements.
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