Welcome To My New Life Fighting A Disease I've Never Heard Of Before....... Ankylosing Spondylitis

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Beauty All Around Us!

on October 17, 2017

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Enjoying the beauty all around us.
Even in unexpected places.

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The House Is Burning

Three weeks ago, I received a call from my mom telling me my sister had a small accident. Immediately my mind thought she meant a motor vehicle accident. Mom quickly explained it was actually an accident involving fire. My sister's home was on fire. Mom didn't seem too have many details. Later I learned my sister asked her daughter-in-law to call mom and not tell mom how bad things really were. Mom is 82 years old and we try to shelter her from worries, she's had enough over the years. I called my sister as soon as I hung up with mom. My sister was crying and said she couldn't talk. I asked if she was ok, with voice cracking between sobs she said "no". I told her I'd be right there. Unfortunately, we live 40 - 45 minutes away, so it's not a quick trip. My oldest son told my mom where I was going, and of course, she wanted to ride along. We headed out, not sure of what we'd find. I drove the interstate in silence, mom and I both lost in thought a

When I am in the sun my arm gets a raised, hot to touch, red rash that burns. Does anyone experience this? Is this related to ankylosing spondylitis? Comments welcomed. Please click follow to join me.

Is Ankylosing Spondylitis Even Real Words

Finally after years of joint aches, inflammation, fatigue, and chronic pain I had an answer. But what the heck did they say I have? I sit silently taking it all in, trying to focus on what I'm being told. To be honest, I don't think I heard a fourth of what the NP told me after that strange sounding name of the disease. Here I am with an answer, THE answer. Is it wrong to feel relief? Happiness? How can I be happy, I just learned I have some weird sounding disease. Yet the flood of relief is overwhelming. I think I may be taking this news oddly compared to other sufferers. Sitting in that little exam room all by myself, I have learned the pain is legitimate. I have suffered this so long without answers at some point I began to wonder is it all in my head. Is what I'm feeling real? I certainly know I hurt but could my mind be controlling all of this pain. I have told the long list of doctors what I experience. Some of them seem to listen and have a genuine concer

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