Welcome To My New Life Fighting A Disease I've Never Heard Of Before....... Ankylosing Spondylitis

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Beauty All Around Us!

on October 17, 2017

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Enjoying the beauty all around us.
Even in unexpected places.

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The House Is Burning

Three weeks ago, I received a call from my mom telling me my sister had a small accident. Immediately my mind thought she meant a motor vehicle accident. Mom quickly explained it was actually an accident involving fire. My sister's home was on fire. Mom didn't seem too have many details. Later I learned my sister asked her daughter-in-law to call mom and not tell mom how bad things really were. Mom is 82 years old and we try to shelter her from worries, she's had enough over the years. I called my sister as soon as I hung up with mom. My sister was crying and said she couldn't talk. I asked if she was ok, with voice cracking between sobs she said "no". I told her I'd be right there. Unfortunately, we live 40 - 45 minutes away, so it's not a quick trip. My oldest son told my mom where I was going, and of course, she wanted to ride along. We headed out, not sure of what we'd find. I drove the interstate in silence, mom and I both lost in thought a

When I am in the sun my arm gets a raised, hot to touch, red rash that burns. Does anyone experience this? Is this related to ankylosing spondylitis? Comments welcomed. Please click follow to join me.

Christmas Without Her 2021

I hope your Christmas this year was spent with those you love most. It certainly has been different from past Christmas for us. I'm sure many are experiencing "first" kinds of holidays this year. Christmas 2020 was spent quarantining from extended family members. Due to my immune system being weakened from my Ankylosing Spondylitis medications, we felt safer by only celebrating with immediate family members. Looking back I wish we could've found a way to do a social distant celebration. Since December is very chilly in our area we didn't have the option of an outdoor event, but maybe we should've made a bigger effort. As bad as 2020 covid cases were in our area, we hadn't seen the surge that the rest of our country was dealing with until 2021. Sadly, as 2021 proceeded we saw friends losing multiple family members. Our hospitals were over capacity and started turning people away. Friends and family members who work in the medical field were exhausted a

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